Symposium Genome Editing, Health innovation, and Responsible Regulation

Introduction Santa Slokenberga, Ana Nordberg, Timo Minssen on behalf of Nordic Permed Law

European Journal of Health Law, Professor Mette Hartlev, University of Copenhagen

Keynote: "Rethinking the governance and regulation of human genome editing" Professor Duncan Matthews, Queen Mary University of London

Moderator: Associate Professor Ana Nordberg, Lund University; discussant Senior Lecturer Andelka Phillips, University of Waikato

• “Somatic Genome Editing with the Use of AI: Big Promises but Doubled Legal Issues” Ph.D. cand. Anastasiya Kiseleva, Vrije Universiteit Brussel & CY Cergy Paris University

• “The right to health and transformation of medical care. - Challenges surrounding fundamental concepts in health regulation”, Associate Professor Anne Kjersti Befring, University of Oslo

• “A room with a view (and with a genetically engineered drug): Advanced Therapy Medicinal Products and genetic tourism in Europe”, Assistant Professor Vera Lúcia Raposo, Coimbra University

Moderator: Professor Timo Minssen, University of Copenhagen; discussant: Associate Professor Ana Nordberg, Lund University.

• “Competition law and human genome editing”, Associate Professor Vladimir Bastidas Venegas, Uppsala University

• “Intellectual property and human genome editing”, Researcher Dr. Jakob Wested, University of Copenhagen

Moderator: Associate Professor Ana Nordberg, Lund University; discussant, Senior Lecturer Santa Slokenberga, Uppsala University

• “The European Court Of Human Rights and Emerging Human Gene-Editing Techniques: Legal certainty in ‘the right to life’ and ‘the right to respect for private and family life’?”, M.sc. LL.M. Merel Spaander, University of Amsterdam

• “Regulating Germline Gene Editing – Drawing the Line Between Legitimate and Controversial Use”, Ph.D. cand. Noemi Conditi, University of Bologna

Moderator: Senior Lecturer Santa Slokenberga; discussant: Professor Jessica Almqvist, Lund University

• “Addressing Cognitive Vulnerabilities through Genome Editing: Techno-Legal Adaptations for Persons with Cognitive Disabilities”, Assistant Professor Pin Lean Lau, Brunel University London

• “Thinking outside of the box: using the Convention on the Rights of Persons with Disabilities to address genetic and epigenetic discrimination in insurance in Spain”, Ph.D. María del Val Bolívar Oñoro, University of Alcala

Moderator: Professor Timo Minssen; discussant: Ph.D., Researcher Emilia Niemiec, Lund University

• “The Past and Future of Genome Editing”, Professor Judit Sandor, Central European University

• “The object-based and process-based regulation of genome editing”, Ph. D. Michal Koscik, Head of the Department of Public Health, Head of the Legal Department, Masaryk University, and Ph.D. Eliška Vladíková, Masaryk University

• “What would it take to enable germline editing in Europe for medical purposes?”, Senior Lecturer Santa Slokenberga, Uppsala University

Concluding remarks: Santa Slokenberga, Ana Nordberg, Timo Minssen on behalf of Nordic Permed Law